The Patrick Woepse Foundation
About the Foundation
Honoring Patrick Woepse’s life while raising awareness for NUT Carcinoma
Our mission is to honor Patrick Woepse’s life while bringing awareness and support to NUT Carcinoma and other rare cancers. The pillars of our foundation are built upon Patrick’s legacy, innovative collaboration, hard work, and resilience. Our team's vision within the cancer community is to aid and advocate for rare cancer research and trials, patient and family care, and areas we find that need change within the NUT Carcinoma community.
About NUT Carcinoma
What is NUT Carcinoma?
A rare and aggressive cancer, primarily diagnosed in young adults. NUT Carcinoma is a midline cancer, meaning it is found in the head, neck, chest (lung) or abdomen. Symptoms include unintentional weight loss, fatigue, pain, cough and shortness of breath.
One of the most concerning aspects of NUT Carcinoma is its rapid progression and resistance to standard cancer treatments. Because it is so rare, it is often misdiagnosed or discovered at an advanced stage, making it difficult to treat. Researchers are actively working to develop better therapies.
How can you help?
Donate. Your support will allow for funding of researchers and labs to study NUT Carcinoma. Due to its rarity, the lack of awareness in both the healthcare system and the public create an underfunded approach to create change.
Donate to the Patrick Woepse Foundation
Join us in honoring Patrick’s life and raising awareness and support for NUT Carcinoma by swimming from 34th street to the Newport Pier and back.
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We can’t wait for you to be a part of it.